Understanding

Posted in Uncategorized by

So recently I tweeted about my problems with trying to get an appointment to see my dermatologist. I can’t believe the problems I’ve experienced and it really has made me angry. My first obstical was a booking clerk telling me that I had diagnosed myself and I should have made a bigger effort to ensure my appointment was sooner as the waiting list is around 36 I was told. I then came off the phone in tears and spoke to my GP who told me not to worry they would write a letter to get my appointment moved forward. I have now recieved a letter from my consultant tellling me he has chosen to decline the request of bringing my appointment forward as he believes my case is not severe.

I am generally stunned at this as I have always from previous experiences been classed as very servere, and I certainly haven’t diagnosed myself. This brought to my attention a point that was made in the See Psoriasis Look Deeper campaign which stated that psoriasis paitents can find it hard to attend appointments due to a few reasons including to consultants not actually understanding the impact of psoriasis. I truely believe that the booking clerk has no idea just how hard I find it to attend hospital appointments and also the fact that my Psoriasis has a massive impact on my mental health and therefore sometimes its urgent I get something sorted before I can start to become depressed. Understanding is something I find key.

On the other hand, I have heard many positive reviews of different dermatologists and just how much they can change your psoriasis experiences, for example having a good understanding of how you feel! I’m just hoping my luck will get better as my consultant who I usually see is brilliant. So fingers crossed.

As a result of this I tweeted this picture just to see how other people feel about their psoriasis…

215286_450627478357245_1405594006_n

These are some replies:

  • Contagious
  • Cureable
  • IS love killing
  • IS Highly Depressing
  • Just skin deep
  • The be all and end all

Moving on..

Posted in Uncategorized by

Hello everyone, it seems ages since I last wrote on here but I will try and update more often!

Things have been changing so much in my life, I started my first full time job in January this year so its been very strange adapting to change and getting myself into a routine. Although this has made it much easier for me to treat my psoriasis. I’ve been very lucky as my psoriasis has been very easy to luck after however it has now started to flare up badly and ive seen a few cracks appearing on my hands and knees. I am currently waiting for a hospital appiontment as towards the end of last year my consultant discharged me and I have been waiting over 4 months now but I’m hoping it will be soon in time for summer!

I am looking to organise another charity fundraiser towards the end of this year for the Psoriasis Association! Any suggestions would be great! You can either comment, tweet or email them!

I would also recommend taking a look at a new psoriasis website – http://victoriajfine.wix.com/psoriasense#!living-with-psoriasis/c1yws This is a brilliant website by a lady called Victoria who I met when I went to Parliament for the See Psoriasis Look Deeper campaign. Please take a look she is working very hard to raise the profile of psoriasis, she is also selling different things to raise money!

I have a few new blogs to write that I will upload shortly!

I hope everyone is well and not too itchy!

Jess

A little bit of everything..

Posted in Uncategorized by

It feel like forever since I last wrote a new post on here and I thought it was about time I gave everyone a quick update about me and my psoriasis aswell as everything else!

So going back to the end of November last year my skin began to worsen once again and I as I had been discharged by the hospital I ended up back in my doctors waiting room where I saw a doctor who was standing in at the clinic that day! I show her my skin an explained that my hands and legs had began to develop cracks and were getting really sore with the weather becoming much colder! To my surprise she turned the computer screen to me and said I’m sorry i’m not sure what I can do, if you pick a cream you have had before I will give you a prescription!!!! I could just feel myself getting angry and said that I would wait to see my orginal doctor who normally deals with me. At this time I was also referred back to the hospital as an emergency case! It’s not a shock that I still haven’t even received an appointment from the hospital 3 months later!

However, my Nan at this time went to a Aloe Vera party where there would a brand of products shown to them and what products was best for each problem from skin, to body to teeth!! My Nan was buying some products when she told the host about my Psoriasis and the lady gave her a tube of creme she suggested I try and said she appreciate if I would let her know my honest opinion of the product! I always laugh off these cremes and products I get sent by family and friends as although I can’t thank them enough for thinking of me very rarely do they have any inpact and most of the products are very costly!

However I began to the use the creme sent which was called Aloe Propolis Creme and is by forever living products and noticed a big change in my skin the more I used it! It DIDN’T CLEAR my psoriasis however it made my skin much more smoother and very rarely do I get many flakes! The moisturiser smells lovely and  although it has a very thick texture absorbs quickly into the skin and isn’t sticky! For me this product really has changed my opinion of branded products and I have bought a couple of tubes now and always use it after showers or baths and I carry a tube in my handbag!

https://www.foreverliving.com/retail/shop/shopping.do?task=viewProductDetail&itemCode=051

I would be interested to know if anyone has used this and how you got on!

Since December my skin has been very good for what I usually deal with which has been nice and for the first time in many years my hands have only cracked twice!!

I hope everyone has had a good start to the new year!! I would also like to thank everyone who was involved in the fund raising events I organised last year which when put together raised £1,400 for the Psoriasis Association which is amazing!!

Please feel free to email me any questions or advice you want to share! I haven’t replied to many emails over the last couple months as I have had alot happening however now I’m settled into the new year I intend to keep running my blog and emails as normal!!

Jess

One year on..

Posted in Uncategorized by

Well its coming to the end of November and I’ve officially been blogging for a year now and it’s fair to say over this time things have changed massively with regards to my understanding and ways of thinking about Psoriasis.
Starting my blog has made a huge difference to the way I think about my psoriasis, it’s made me much more determined, comforted and passionate about my Psoriasis.
Using twitter and my blog to interact with others who have experienced, live with or know somebody living with Psoriasis has given me a massive insight into the world of others who find Psoriasis just as difficult as myself to live with aswell as people who face their psoriasis head on and don’t let it impact their everyday life.

It’s been very touching receiving emails, tweets and messages from so many people sharing their stories and supporting my blog which makes writing this a pleasure.

This brings me to the campaign See Psoriasis Look Deeper launched by the Psoriasis Association which i’m very proud and honoured to be a part of.

Through this last year I have seen how the work of charities and support from social networking sites have improved awareness and understanding of Psoriasis. I truely believe that this will continue and in 2013 there will be many positive changes for the way in which Psoriasis Paitents are treated and how Psoriasis is thought of, although this won’t be necessary for all Psoriasis patients, for people like myself the development of awareness of Psoriasis leaving a psychological impact will help me overcome the difficulties I face with low self esteem and confidence.

 

Aswell as my blog this year I arranged 2 charity events to raise money for the Psoriasis Association whose work I personally rely on as I use there resources to help me deal with my Psoriasis. I am really proud to say that the support of my friends, family and local community have meant that I could pass on £1,500 this year and I really hope this can continue throughout 2013.

 

Attending Parliament, being included in the top 10 psoriasis blog and the support I have recieved has been amazing and it just shows how lucky I really am. I never thought of any of this when I sent my first post out to my close family and friends!!

Thank you for all your support, encouragement and wishes.

Jess x

 

AUCTION LIST.

Posted in Uncategorized by

A full list of auction prizes, pictures and details.

ALL items will finish a week tomorrow (17/11/2012)

1. ‘Paradise’ dress – size 8 kindly donated by Rule 1 Store. Winning Bidder was Susan O’Brien with a bid of £20

Website : http://Rule1Store.com

Twitter: @rule1store

.

 

 

 

 

 

 

 

 

2. 2x Tickets to watch Comedian Greg Davies (as seen on The Inbetweeners and Mock the Week) – Winning bidder was Trevor Gough with a bid of £60

2 x Tickets to watch Comedian Greg Davies Live at his SOLD OUT show @ Theatre Severn on the 24/2/20123

Kindly donated by Greg himself!

3. ‘Shopaholic’ design jute bag kindly donated by Lulus Boutique – Winning bidder was Sue Mansfield with a bid of £10

Website for all designs : http://www.lulusboutiquedesigns.com

Twitter: @lucy___b

 

 

 

 

 

 

 

 

 

4. Set of Natural Wheatbag products kindly donated by Blooming Surprise – Winning bidder was Katie Loynes with £15

1x classic body pillow. 1x lamb snuggle buddie and 1x baby dino snuggle buddie.

Website: http://www.thenaturalwheatbag.net

Twitter: @BloomingSurpris

 

 

 

 

5. Jubilee pocket scarf – 100 % silk and handmade in the UK – kindly donated by Alison at Age of Reason - Winning Bidder was Sheila Gough with a bid of £5

Website: http://www.age-of-reason-studios.com/p/god-save-the-queen!-p46.aspx ( item can be seen using this address)

Twitter: @AgeofRScarves

 

 

 

 

 

 

 

 

 

6. Lovely bracelet handmade and donated by Taz – Winning Bidder was Jo Rutter with £6

Twitter: @Aayanijewellery

Website: http://aayanijewellery.com

 

 

 

 

 

 

 

 

 

7. Beautiful brown large ladies Handbag donated by Nica Handbags – Winning Bidder was Jennie Lewis with £50

Twitter: @Nica_Handbags

Website: http://www.nica.co.uk/shop

 

 

 

 

 

 

 

 

 

8. Authentic signed Russell Grant book kindly donated by Sophie Hinton. – Winning Bidder was Katie Loynes with £10

‘The illustrated Dream Dictionary’ signed and written by Russel Grant.

 

 

 

 

 

 

 

 

 

9. 2 tickets to ONE days play at any home match @ Lancashire County Cricket Club – Highest Bidder was Scott Pulling with £30

Valid for 2 people to ONE days play during season 2013 ( except T20 and International games)

——–

10. Wolverhampton Race Tickets – Highest bidder was Josh Gough and Chris Peel with £40

2 tickets to be used to the races of your choice. (except Boxing Day)

——–

11.

******  Family Ticket   -   2 x Adult 4 x Children – First Class – Return
on London Midland Train Service – Winning bid was £45 from Anna Thomas

Any Route choosen by you. To be used before the end of the year ******

——–

12.3 month gym membership @ SERENITY Ladies own gym Shrewsbury Winning bid was £20 from Jo Rutter

Website: http://serenityshrewsbury.co.uk/

——–

13. 2  x tickets to see Cinderella @ Oakengates Theatre, Telford – Winning bid was £30 from Gail Matthews

Show details: http://www.oakengates.ws/WhatsOn_focus.asp?ShowId=429&sC=page1

Tickets for the 21/12/2012 @ 6.30pm

——–

14. 2 course for 2 people off the £10 menu at The Peach Tree Shrewsbury – Winning bid was £25 from Sonata Jones

Website: http://www.thepeachtree.co.uk/

——–

15.  Genuine signed autobiography and photograph from Craig Revel Horwood (Strictly Come Dancing Judge)

‘All balls and glitter – my life’ both book and photograph signed by Craig ( This was sent by his management)

 

 

 

 

 

 

 

 

 

 

16. Genuine signed John Bishop DVD ‘The sunshine Tour.’ – Winning bid was Karen Smith with £16

( Sent from Management)

 

 

 

 

 

 

 

 

 

17. Selection Of bracelets donated by Cutey (AUCTION for EACH bracelet)

Website:www.cutey.co.uk

Twitter: @cuteyjewellery

Blue on White – Winning Bidder Jo Rutter with £6

 

 

 

 

 

 

 

 

Red on White – Winning Bidder was Sheila Gough with £6

 

 

 

 

 

 

 

 

Charm bracelet – Winning bidder was Dawn Wheeler with £10

 

 

 

 

 

 

 

 

18. Personalised Hoody from Comfort Junkie – Highest Bidder was Emma Moreton with £25

Website for amazing Hoodies and Onesies : http://www.comfortjunkie.co.uk

——

19. Digital Age photoshoot with Rob W May Photography – Highest winning bidder was Sue Mansfield with £50

please have a look at the package details on http://www.robwmayphotography.co.uk

1 Hour shoot, on location or studio, 10 best shots on disk.

——

20. Genuine Signed Jessie J picture and poster complete with CD – Highest bidder was Don O’Brien with £30

( Sent by Jessie’s Management)

 

 

 

 

 

 

 

 

 

21.

Beautiful heart shaped chalk board kindly donated by Lavender House Designs – Winning bidder was Katie Loynes with £10

Website: http://www.lavenderhousedesigns.co.uk