Many people have found my blog through an article on the BBC Newsbeat page, which was produced through an interview with BBCs Tina Daheley.
Last week I was given the wonderful opportunity to travel to London to take part in some radio interviews to talk to about my experiences of living with Psoriasis and also talk about an exciting new project in which I’ve been involved.
I have been working in partnership with leading health care professionals and Leo Pharma to develop The Psoriasis Think Twice campaign. The aim of Think Twice is to raise awareness of psoriasis patients that are stuck in the cycle of repeat prescriptions or who aren’t receiving the best support and care for their psoriasis, as well as providing useful resources to enable this to change and patients to become in control of their psoriasis.
This was something I found as a great opportunity as it gave me a chance to change what may have been negative experiences for me into positive experiences for other people living with psoriasis.
One resource for me which is so important is called 7 Tips for 7 minutes, which is a resource for patients to use when attending their appointments with health care professionals in order to help give some suggestions as to what questions you may like to ask, what you may need for your appointment and a place to write some extra things you may like to have as preparation. One thing I have learnt over time is never be afraid to ask your dermatologist questions, this links back to my previous post! I like to know how I should be using my treatment, why this is the right treatment for me (why it is the best option) and also what if it doesn’t work? People may think this is a negative question however it is very reassuring to know that this isn’t the only option. These questions could have changed my whole experience of psoriasis if I had known to ask them earlier. This is why a tip sheet for me is a very important resource. ( The link for the tip sheet is on the Think Twice website.)
When in London I took part in a number of interviews with a dermatologist called Dr Anthony Bewdley, it was a great to have a chance to answer some questions about my experiences and also learn how things are changing to ensure patients are receiving sufficient care.
One of the questions I was continuingly asked was why do I think it is important for paitients to make sure they have regular check ups, and I personally believe continuous appointments with a health care professional allows you to be in control of your psoriasis and get the right support you need and if this isn’t the case then something isn’t right. Don’t be scared to ask for a second opinion or questions the treatment you get given. To be happy and healthy the treatment and care has to be whats right you and your lifestyle.
Please make sure you have a look at the Think Twice website.
There are some wonderful resources on the website including a wonderful video called Exposed by a lovely person called Rena. I found this video useful when trying to explain how I was feeling about my psoriasis as it meant I didn’t have to talk I could let my parents and family watch the video.
Looking forward to hearing from you all.